Words of Inspiration and Modivation
Posts
The Political Will to Improve Early Childhood Systems, Week 6
Hypothetical Family Situation Excited to be pregnant, my husband and I knew there was a 1 in 4 chance our baby would be born with Merosin Negative Congenital Muscular Dystrophy. This particular type of developmental disability is autosomal recessive which means, “Both parents are carriers of the conditions, although clinically unaffected” (MDC, 2008, p. 1). Prior to becoming pregnant, my husband and I were tested and our results revealed, we both carried the pathogenic variant (Quijano-Roy, 2012, para. 5). Even though we knew it was a possibility, we never actually believed it would become our reality until the results from the, “Chorionic villus sampling (CVS), is a prenatal test in which a sample of chorionic villi is removed from the placenta” (Chorionic, 2015) came back positive. As the doctor began describing what Merosin Negative Congenital Muscular Dystrophy was, my body quickly became paralyzed by fear, denial, and an overwh...
The Political Will to Improve Early Childhood Systems
References: Birth through Eight State Policy Framework. (2015). Retrieved from http://earlysuccess.org/sites/default/files/website_files/AESBirthThru8FrameworkFINAL3 CEC. (2017, May 8) [pdf]. Retrieved from https://cec.sped.org/~/media/Files/Policy/Current%20Sped%20Issues%20Home/302bSignOnFY2018WithSigs Early Childhood Advisory Council (ECAC). ( n.d. ). Retrieved from http :// www.earlychildhoodohio.org/ecac/index.stm NAEYC. ( n.d. ). Retrieved from https://www.naeyc.org/events/policy-forum